As many of you will know we always support Cornish based charities, organisations and individuals. We feel it is important that all as the money is raised in Cornwall it should made available to help Cornish people. As there are so many good causes to support it is always difficult to make a final decision and this year has been no exception! However, for the 2016 Bale Push we have chosen Cornwall Hospice Care [in memory of Father Morley], Motor Neurone Disease Association [Cornwall Branch]and Help Izzy Walk as our main organisations. We will of course be making our usual donations to Crantock SLSC and Holywell SLSC and other local organisations.
Here is a little information about each one….
CORNWALL HOSPICE CARE
Cornwall Hospice Care is a leading independent Cornish charity providing specialist care free of charge, to patients with life limiting illnesses aged 18 and over. The nursing teams provide this care at two hospices, Mount Edgcumbe Hospice in St. Austell and St Julia’s Hospice in Hayle, in Cornwall’s hospitals, care homes and in the community. They also care for people in their own homes. It costs £8.4 million a year to run Cornwall Hospice Care, but only 16% of this is funded by the health authority, and that money pays for just 86 days of care. We therefore have to raise 84% of funds from voluntary sources.
Hospice Care is available to people with complex symptoms 24 hours a day, 7 days a week. The highly trained specialist teams deliver compassionate hospice based care which can’t be provided anywhere else in Cornwall. All the money raised, stays in Cornwall for the benefit of local people. Cornwall Hospice Care is also one of the main providers supporting the Peninsula Medical School curriculum in Cornwall. The generosity of the public is vital and we applaud the tremendous support that the Crantock Bale Push has given in the past and are so grateful that we have been selected this year to benefit from what has become one of Cornwall’s most successful local fund raising events.
MOTOR NEURONE DISEASE ASSOCIATION
The Cornwall Branch of the Motor Neurone Disease Association has the sole aim of serving all those in the county who are affected by Motor Neurone Disease (MND). This includes people with MND, their carers, family and friends, in fact anyone who has been touched in some way by the disease.
MND is an incurable condition that paralyses the muscles leaving people unable to do the everyday things the rest of us take for granted. Walking, talking and swallowing may become virtually impossible, yet the mind and senses remain mainly intact.
We liaise with health and social care professionals such as Speech Therapists, Occupational Therapists and the medical profession.
Our branch holds regular support meetings and lunches for people living with MND and their carers. These provide an opportunity to meet with other people living with the disease, and to share experiences and ideas.
Fundraising and raising awareness are also very important aspects of branch activities, and we organise several events throughout the year which are well supported.
The Cornwall Branch is completely run by volunteers. We are always interested in hearing from people who can help with events or who want to get involved with running the branch. For more information go to www.mndcornwall.org.uk
Branch Contact: Mrs Cathey Aitkenhead Tele:07464 721244 Email:firstname.lastname@example.org
HELP IZZY WALK
Help Izzy Walk was set up by local parents Mike and Ursula Pearce to raise money so that their daughter Izzy can have SDR, a life changing spinal operation which will hopefully help Izzy walk. Mike and Ursula along with family and friends have had a manic 5 months fundraising to raise funds for Izzy. Izzy is one of identical twins and she has Cerebral Palsy Spastic Diplegia. This means she has increased muscle tone and her legs are constantly stiff (spasticity), she suffers from pain and also has difficulty with leg movements, coordination and balance. Because of her condition, Izzy cannot walk or even stand unaided. Selective Dorsal Rhizotomy (SDR) is a life changing complex spinal operation, the only surgical procedure that permanently reduces or eliminates stiffness and spasticity in the legs.
Spasticity causes a lot of pain, and over time, shortening of muscles and tendons, joints contractures and bone deformities. This is not a cure for Cerebral Palsy but without the spasticity, Izzy will be given the chance to improve her range of movements and, with intensive physiotherapy, strengthen her muscles, hopefully giving her the opportunity to walk.
The results from SDR are simply incredible and children that were told they would never walk, are not only walking, they are running, jumping and dancing too. This operation could potentially mean the difference between Izzy walking independently and her being in a wheelchair for the rest of her life. Izzy is a bright, happy, cheeky 6 year old girl, who loves to sing and dance. She's a pupil at St. Columb Major Academy. All her family want is to give Izzy the best chance to be able to run around with her twin sister Gabby (her best friend!) and be able do all the things we all take for granted. You can follow Izzy's progress and keep up to date with other fundraising events for Izzy on their Facebook page